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Posterior Cortical Atrophy Annual Seminar

28/04/2023 @ 10:30 am - 5:30 pm

PCA Annual Seminar

This is the first PCA Annual Seminar bringing together people living with PCA, clinicians and researchers. Sessions will feature presenters from international centres of excellence including UCL Queen Square Institute of Neurology, the UK MRC Cognition and Brain Sciences Unit and the Mayo Clinic, USA.

Please sign up as a member of RDS so we can share information about future events and resources with you. RDS is a free service funded by The National Brain Appeal (TNBA).

This is an in-person event only. There will not be a stream or zoom link available. Attendance is free but donations to The National Brain Appeal (TNBA) are welcomed. Lunch will be provided thanks to the kind support of TNBA. As such please let us know if you need to cancel your ticket so we can offer the ticket to another RDS member.

Register on Eventbrite


Agenda

10:30 – 11:30 – Arrivals and Refreshments

11:00 – 11:10 – Welcome and announcements – Prof Sebastian Crutch, Dementia Research Centre UCL

11:10 – 11:25 – What is PCA? – Prof Sebastian Crutch, Dementia Research Centre UCL

11:25 – 11:40 – Living with PCA: reflections on the journey to diagnosis

11:40 – 12:00 – What causes PCA? – Dr Jonathan Graff-Radford, Mayo Clinic

12:00 – 12:25 – Panel discussion

12:25 – 12:30 – Introducing Research Opportunities for GNMLD – Emilie Brotherhood, Dementia Research Centre UCL

12:30 – 13:30 – Lunch

13:30 – 13:50 – Visual assessment in PCA – College of Optometrists

13:50 – 14:05 – Neuropsychological assessment in PCA – Dr Samrah Ahmed, University of Reading

14:05 – 14:20 – Strategies, empowerment and PCA peer support groups – RDS Direct support team

14:20 – 14:35 – Living with PCA: adapting following diagnosis

14:35 – 14:50 – Tailoring counselling and support to suit people with PCA – Dr Emma Harding, Dementia Research Centre UCL

14:50 – 15:20 – Break (and optional departure)


PCA research (RDS members welcome to stay but this session is designed specifically for researchers and clinicians)

15:20 – 15:35  – PCA research update – Dr Keir Yong, Dementia Research Centre, UCL

15:35 – 16:00 – Current and future research directions – Dr Jonathan Graff-Radford, Mayo Clinic

16:00 – 16:10 – Reaching and coordination – Dr Matthew Bancroft, DCMN UCL

16:10 – 16:20 – Spatial orientation and balance – Dr Dilek Ocal, Dementia Research Centre, UCL

16:20 – 16:30 – Neuropathology of PCA – Dr Zeinab Abdi, Queen Square Brain Bank, UCL

16:30 – 17:00 – Considering heterogeneity beyond PCA- transdiagnostic perspectives – Prof Matthew Lambon-Ralph, Cambridge

17:00 – 17:30 – Panel discussion

17:30 – Close

Venue

Conway Hall
25 Red Lion Square
London, Greater London WC1R 4RL United Kingdom
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