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DTSTART;TZID=Europe/London:20251201T140000
DTEND;TZID=Europe/London:20251201T150000
DTSTAMP:20260725T171246
CREATED:20251110T080945Z
LAST-MODIFIED:20251110T080945Z
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SUMMARY:OPTIMISE-ing informed consent
DESCRIPTION:Informed consent is a fundamental principle of ethical research. People with conditions that affect their ability to communicate and/or make decisions may require additional support to decide whether to take part in a study and provide consent. However\, informed consent processes in clinical trials are often not designed to take account of additional communication and/or decision-making needs. This can lead to people being unfairly excluded from trials or\, for some\, it may mean that they are deemed to lack capacity to consent and an alternative person is involved on their behalf. \nWith more accessible information and the right support in place\, people with communication and/or decision-making needs will be better able to make\, or contribute to\, decisions about participating in research. This protects their right to make their own decisions\, and ensures their views are heard. \nOPTIMISE project \nIn conjunction with a group of researchers and a lay advisory group\, the OPTIMISE project is developing recommendations to improve the design of informed consent methods in clinical trials to ensure they are equitable and accessible for people with additional communication and/or decision-making needs. \nThis will be achieved through: \n1. Reviewing existing evidence about enhanced consent processes\n2. Expert stakeholder consultation to develop a set of recommendations\n3. Mapping existing resources (including from CONSULT) onto the recommendations\n4. Developing a toolkit to help researchers and others use the recommendations \nJoin us for the OPTIMISE launch webinar \nWe will be launching the OPTIMISE recommendations at a webinar in December 2025. At this webinar\, we will discuss why inclusive consent matters\, introduce the OPTIMISE recommendations and supporting resources\, and outline how they can help researchers address challenges in recruitment and consent. \nThis will be followed by a live Q&A with our expert panel on the theme: “What are the key challenges in designing inclusive consent processes\, and how can we address them?” Attendees are invited to submit questions ahead of the webinar or during the event. \nEveryone is welcome to attend. The event might be of particular interest to researchers who design and conduct research involving populations with communication and decision-making needs\, anyone interested in how we can deliver more inclusive research\, and those with a role in reviewing or supporting research including REC members\, funders\, and public involvement contributors. \nDate: 1st December 2025\nTime: 2-3pm\nRegistration: https://app.onlinesurveys.jisc.ac.uk/s/cardiff/optimise-webinar-registration​ \nTo submit questions or for more information please contact: Dr Victoria Shepherd ShepherdVL1@cardiff.ac.uk
URL:https://www.dementiaresearcher.nihr.ac.uk/event/optimise-ing-informed-consent/
LOCATION:Online\, United Kingdom
CATEGORIES:Training
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251203
DTEND;VALUE=DATE:20251206
DTSTAMP:20260725T171246
CREATED:20251029T130048Z
LAST-MODIFIED:20251029T130048Z
UID:10001979-1764720000-1764979199@www.dementiaresearcher.nihr.ac.uk
SUMMARY:Qualitative Methods in Clinical Trials
DESCRIPTION:The course introduces the key considerations when using qualitative methods in clinical trials. Throughout the three-day course\, delegates will learn about the theory\, relevance and value of qualitative research in all stages of a clinical trial as well as gain an appreciation of different types of qualitative methodology used in clinical trials. We will primarily focus on clinical trials but will also consider qualitative research as part of feasibility studies that can be used to test interventions in preparation for a large clinical trial.  \nBy the end of the course\, participants should: \n\nUnderstand how qualitative research can complement trial methodology at all stages of clinical trials\nAppreciate specific methodological issues such as ethical requirements and sampling challenges when designing qualitative research\nAppreciate how to generate\, manage and analyse qualitative data in a clinical trial\nUnderstand reporting requirements for qualitative research conducted as part of a clinical trial\n\nThe course will incorporate a range of activities (individual\, didactic\, and small group) and discussion to allow students to practice and enact learning. \nThe course is intended for anyone seeking an introductory course on the use of qualitative research in clinical trials including the theory\, relevance and value in all stages of clinical trials. \nThe course will comprise of lectures\, activities (individual\, didactic and small group) and discussion. \nExact timing and further details will be provided nearer the time\, though days will usually start around 09.00 and end at 16.30. \n\n\nCourse tutors\n\n\n\nPaul Leighton – Associate Professor in Health Services Research at the Centre of Evidence Based Dermatology \nKirsty Sprange – Assistant Professor of Clinical Trials at the Nottingham Clinical Trials Unit \nLouise Thompson – Associate Professor in Occupational Psychology\, Centre for Organisational Health and Development \nRachel Evley – Senior Qualitative Advisor in the NIHR Research Support Service and an Honorary Associate Professor in Anaesthesia & Critical Care \n\n\nCost\n\n\n\nEarly Bird rate: If you book on or before 6th November 2025\, you will be entitled to the Early Bird rate\, cost as follows: \n£195 for 3 days – Person residing in a low and middle income country\, as defined by DAC list\, at the time of registration.\n£312 for 3 days – University of Nottingham\, School of Medicine student or staff member\n£351 for 3 days – University of Nottingham student or staff member (NOT School of Medicine)\n£351 for 3 days – NHS employee\n£390 for 3 days – anyone who does not fall into any of the categories above \nStandard rate: Any bookings made after 6th November 2025 will be charged as follows: \n£255 for 3 days – Person residing in a low and middle income country\, as defined by DAC list\, at the time of registration.\n£408 for 3 days – University of Nottingham\, School of Medicine student or staff member\n£459 for 3 days – University of Nottingham student or staff member (NOT School of Medicine)\n£459 for 3 days – NHS employee\n£510 for 3 days – anyone who does not fall into any of the categories above \n\nFind out More
URL:https://www.dementiaresearcher.nihr.ac.uk/event/qualitative-methods-in-clinical-trials/
LOCATION:Nottingham Clinical Trials Unit\, Applied Health Research Building\, School of Medicine\, University of Nottingham\, University Park\, Nottingham\, NG7 2RD\, United Kingdom
CATEGORIES:Training
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DTSTART;TZID=Europe/London:20251203T140000
DTEND;TZID=Europe/London:20251203T150000
DTSTAMP:20260725T171246
CREATED:20251117T133108Z
LAST-MODIFIED:20251117T133108Z
UID:10001993-1764770400-1764774000@www.dementiaresearcher.nihr.ac.uk
SUMMARY:Introduction to the clinical diagnosis of bvFTD
DESCRIPTION:ON-FIRE Conversations: an introduction to the clinical diagnosis of bvFTD \nThe ON-FIRE study team hosts Dr Richard Bevan-Jones\, who is introducing the clinical diagnosis of the behavioural variant of frontotemporal dementia (bvFTD). \nIf you are curious to learn more about this topic\, have questions\, or share your own expertise in the discussion\, join this ON-FIRE conversation. \nRegister to Attend
URL:https://www.dementiaresearcher.nihr.ac.uk/event/introduction-to-the-clinical-diagnosis-of-bvftd/
LOCATION:Online\, United Kingdom
CATEGORIES:Training
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251204
DTEND;VALUE=DATE:20251205
DTSTAMP:20260725T171246
CREATED:20251020T082746Z
LAST-MODIFIED:20251020T082746Z
UID:10001964-1764806400-1764892799@www.dementiaresearcher.nihr.ac.uk
SUMMARY:Co-creating communication guidance videos
DESCRIPTION:Co-creating communication guidance videos for delivering a diagnosis of dementia. \n\nIn this presentation\, we will show how we analysed the communication in real dementia diagnosis meetings\, and used these findings to develop three guidance videos for people with dementia and clinicians who deliver diagnoses. We will discuss how we did this as a team of university researchers and people living with dementia\, how we filmed the videos with real people with dementia and their spouses\, and the results of our evaluation of the videos with clinicians. \nJemima Dooley\, Joe Webb\, John Hyde and Gail Gregory – University of Exeter \nThis webinar is free to attend. Complete the booking form to register.
URL:https://www.dementiaresearcher.nihr.ac.uk/event/co-creating-communication-guidance-videos/
LOCATION:Online\, United Kingdom
CATEGORIES:Training
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