In this session, we hear from Dr Antoinette O Connor & Dr Rasa Mikelyte to talk about the the delivery of 'Patient and Public Involvement in Dementia Research' in addition we pleased to have Trevor Salomon, Alzheimer’s Society Volunteer & Vice-Chairperson of the European Dementia Carers Working Group as a co-host, and to provide a lay perspective for this show.
The Dementia Researcher Salon Webinars take place every Wednesday at 12 noon / 8.00pm UK Time. Join live in the dementia researcher community, watch the recordings immediatley after they happen - or wait 3 months for their release to YouTube.
First broadcast in the Dementia Researcher Community - watch more recordings and join weekly sessions at:
https://onelink.to/dementiaresearcher
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Dementia research isn’t just about understanding the brain—it’s about understanding the lives of those affected. Patient and public involvement (PPI) brings the lived experiences of individuals with dementia and their families to the heart of research, shaping questions, methods, and outcomes that truly matter. But how do we go beyond tokenistic inclusion to create genuine partnerships? How do we ensure these voices are heard and acted upon? Today, we’ll delve into the transformative power of PPI, exploring how collaboration with patients and the public can drive more impactful, compassionate, and meaningful dementia research.
Speakers
Dr Antoinette O'Connor is a Consultant Neurologist at Tallaght University Hospital in Dublin. She graduated from UCC medical school in Ireland in 2012, and completed a PhD at University College London investigating presymptomatic biomarkers of Alzheimer’s disease, and followed that with an Alzheimer’s Society Clinical Research Training Fellowship in 2018. She Antoinette is interested in Young onset and genetic forms of dementia with a particular interest in presymptomatic biomarkers of Alzheimer’s disease.
Dr Rasa Mikelyte is an NIHR / Alzheimer's Society Dem Comm Fellow in the Centre for Health Services Studies, University of Kent, and NIHR Applied Research Collaboration (ARC) Kent, Surrey & Sussex. Rasa's research spans dementia care and policy, integrated care, adult social care, and palliative/end-of-life care. Outside research Rasa has taken on, and enjoyed various roles, such as acting as an assistant psychologist in a memory clinic, dementia care home worker, and provided live-in dementia care. Rasa is passionate about PPI, driven through dementia care work that has made them a better researcher.
Programme
The format of the event is a 30 minute livestream where the speakers will each present their thoughts on this topic for 10 minutes each, the host will then ask questions and the livestream will end. The speakers will then join the online chat and interact with the audience, answering questions and giving those who attended a chance to share their thoughts on the topic.
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