Researcher Living with Alzheimer’s
Area of Research:
Stigma of Dementia, technology, consent, ethics, meaningful engagement of people living with dementia.
Tell us a little about yourself:
Researcher, Author, Volunteer Living with Alzheimer’s. I have an honorary Doctor of Laws degree in recognition of my efforts “countering negative stereotypes and promoting an inclusive society in which persons with dementia can make an active and meaningful contribution.” I was diagnosed in 2007 at the age of 58.
Tell us a fun fact about yourself:
I don’t know how to answer this – I can’t say I’m a lot of fun!
Why did you choose to work in dementia?
1) my mother lived with dementia; 2) I have dementia; 3) I have a voice and something to say; 4) Combined with my experiences in business, I have a unique perspective on living positively with dementia, 5) It gives me a purpose.
What single piece of advice would you give to an early career researcher?
Approach your work with an open mind, include the voice(s) of living experience, and presume capability.
What book are you reading right now? Would you recommend it?
I recently finished A Tattoo on my Brain ~ A Neurologist’s Personal Battle against Alzheimer’s Disease by Daniel Gibbs.