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Follow Golnaz Atefi on her 1000km Roller Skating trip for World Alzheimer’s Month

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Follow Golnaz Atefi as she skates her way through Europe on a 30-day, 1,000 km epic journey across Europe in honour of World Alzheimer’s Month (and also a potential World Record).

Golnaz’s mission is to raise awareness about the critical need for better representation in dementia-related research and care.


Rolling for Dementia - A 1000km trip for World Alzheimer's Month

#RollingforDementia - Day 20 - Crossing the border for world record attempt, skating for dementia

24/09/2024 10:52 pm

Day thirteen of my skating road trip, and I am in Amsterdam UMC to meet with Professor Wiesje can der Flier & Ilse Oostveen hear about her brilliant work and the ABOARD Project. “Stopping Alzheimer’s before it starts” - This is the slogan of a this nationwide, collaborative project in the Netherlands, led by Wiesje van der Flier from Alzheimer Center Amsterdam. ABOARD, short for “A personalized medicine approach for Alzheimer’s disease”, is a public-private project which aims to prepare for a future in which Alzheimer’s disease is stopped before dementia has started.

This is realised by: improving timely and accurate diagnosis, developing individualised risk profiles, initiating nationwide data collection, with a focus on patient-reported outcomes, and a focus on prevention strategies by creating awareness around dementia and brainhealth.

In addition, the readiness of the Dutch healthcare system for disease-modifying treatment will be evaluated. The ABOARD project has a duration of five years.

https://www.alzheimer-nederland.nl/onderzoek/projecten/aboard

45km more achieved against my 1000km target... and thankfully most of the journey was paved (its hard to skate on a mud track).
--

Golnaz Atefi is undertaking an EPIC trip roller skating journey through through Europe - skating over 1000km. Raising dementia awarness, chatting to people living with the disease, researchers and advocates along the way to talk about her PhD research, and to hear their stories - and all in World Alzheimer's Month - whilst also trying to earn the World Record for the most km skated on inline skates in a single month..

@AlzheimerEurope   @AlzheimerNederland  #worldalzheimersmonth #dementia #dementiaresearch #brainhealth

Day thirteen of my skating road trip, and I am in Amsterdam UMC to meet with Professor Wiesje can der Flier & Ilse Oostveen hear about her brilliant work and the ABOARD Project. “Stopping Alzheimer’s before it starts” - This is the slogan of a this nationwide, collaborative project in the Netherlands, led by Wiesje van der Flier from Alzheimer Center Amsterdam. ABOARD, short for “A personalized medicine approach for Alzheimer’s disease”, is a public-private project which aims to prepare for a future in which Alzheimer’s disease is stopped before dementia has started.

This is realised by: improving timely and accurate diagnosis, developing individualised risk profiles, initiating nationwide data collection, with a focus on patient-reported outcomes, and a focus on prevention strategies by creating awareness around dementia and brainhealth.

In addition, the readiness of the Dutch healthcare system for disease-modifying treatment will be evaluated. The ABOARD project has a duration of five years.

https://www.alzheimer-nederland.nl/onderzoek/projecten/aboard

45km more achieved against my 1000km target... and thankfully most of the journey was paved (its hard to skate on a mud track).
--

Golnaz Atefi is undertaking an EPIC trip roller skating journey through through Europe - skating over 1000km. Raising dementia awarness, chatting to people living with the disease, researchers and advocates along the way to talk about her PhD research, and to hear their stories - and all in World Alzheimer's Month - whilst also trying to earn the World Record for the most km skated on inline skates in a single month..

@AlzheimerEurope @AlzheimerNederland #worldalzheimersmonth #dementia #dementiaresearch #brainhealth

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YouTube Video UExlVUkxR0hCNEV2UnRoNHNDYnotd2x5Q3BMSWNmZ0NJaC4xOTEzQzhBQzU3MDNDNjcz

#RollingforDementia - Day 13 - Highlights from Amsterdam UMC

14/09/2024 11:02 pm

#RollingforDementia - Day 4 - Highlights interviewing David Grey & Dr Gili Yaron in her kitchen!

05/09/2024 12:11 am

#RollingforDementia - Day 3 - Interviewing Dr Franka Meiland in Café ’t Tolhuis & Escaping Rain

03/09/2024 10:21 pm

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