LEARN to help people Join Dementia Research

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LEARN to help people Join Dementia Research

Join Dementia Research has helped more than 40,000 people connect with research studies over the past four years. As a result, researchers and their studies have massively benefited with more than 11,000 study enrolments in this time. Last week we published a podcast sharing how early career researchers have used Join Dementia Research to support recruitment to their studies, and how to apply to use the service. However, if we are going to turn the corner and find ways to better prevent, diagnose, treat, care and beat the diseases that come with dementia, and support recruitment to studies, then more help is needed to support patients to become involved.

To raise awareness of how Join Dementia Research can help people with and without dementia, and the role healthcare professionals can play, the National Institute for Health Research has launched the LEARN Join Dementia Research awareness tool.  

This short online tool is aimed at anyone working in healthcare who plays a role in caring for and supporting people with dementia, their carers and families. The process is simple:

  1. Watch a short film.
  2. Answer a few questions about what you’ve just seen.
  3. Find out ways you could help.
  4. Tell us a little about yourself.
  5. Receive your certificate.

Our aim is to ensure that everyone can simply and easily help people become involved.

The NIHR with support from NHS England and Health Education England is asking for healthcare service providers and colleagues in the NIHR and Universities to share this tool and encourage staff to take a few minutes to complete the process, and support them to make a difference to deliver more awareness amongst their patients.

About Join Dementia Research

Launched in 2015, by the National Institute for Health Research, Join Dementia Research enables people with and without dementia to be registered and matched to UK studies, supporting researchers looking for people for theirs studies. It is delivered in partnership with Alzheimer Scotland, Alzheimer’s Research UK and Alzheimer’s Society and is funded by the Department of Health and Social Care England.

Policy Support

The National Institute for Health and Care Excellence (NICE) recommends that health and care professionals should help people living with dementia and their carers find out about opportunities to take part in research, and empower them to make their own decisions about getting involved. Additionally, the objectives of the Dementia 2020 Challenge state that appropriate staff should be able to signpost patients to Join Dementia Research, and that all newly diagnosed people will receive information about JDR, and that 25% of people with dementia should be registered by 2020.

Measuring Uptake

Information on how many people have completed the process, and the organisations they work for are published on out toolkit website at nhs.joindementiaresearch.nihr.ac.uk/data-and-statistics/

Thank you in advance. For any questions please contact admin.nddr@nihr.ac.uk

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